CASE THREE: BRETT FORMIN

Misdiagnosed with Type II Diabetes at age 13 Diagnosed with Type I Diabetes at age 15. Started insulin and continuous glucose monitor (CGM). Multiple Emergency Department visits and hospitalizations for diabetic ketoacidosis (DKA), peripheral neuropathy, juvenile rheumatoid arthritis, and asthma from age 20 to 21 Diagnosed with gastroparesis at age 24 Hospitalization for episode of hypoglycemia at age 24 Multiple visits to podiatrist for foot ulcers, especially on right foot, starting at age 21 Surgery to remove a toe on the right foot due to chronic ulcer at age 26 Multiple emergency department visits for gastroparesis from age 26 to 27 Gastric peroral endoscopic myotomy (G-POEM) for gastroparesis at age 27 At new hospital, diagnosed with acute on chronic exacerbation of diabetic neuropathy. Admitted at age 29 for diabetic ketoacidosis (DKA). Required intubation for 2 days. Developed significant numbness and weakness in both hands and lower extremities. Switched hospitals at this time. Visit to Emergency Department at age 29 revealed hypokalemia, acute kidney injury (AKI), and chronic right foot ulcer. Admitted to hospital for removal of another toe. Treated for pneumonia in hospital. Inpatient physical therapy started after release from hospital. Progressed from functional quadriplegia, to walker, and now uses cane.

Brett Formin[1] is a 30-year-old male with Type I diabetes. He was originally misdiagnosed with Type II diabetes at age 13. Upon diagnosis of his Type I diabetes at age 15, Brett started using insulin, an insulin pump, and a continuous glucose monitor (CGM). Throughout his teens and young adulthood, Brett felt grateful to be on his mother’s insurance plan. She had very comprehensive coverage through her job with the New York Police Department. Therefore, Brett and his family were not particularly concerned about affording his medications and devices at this time.

Brett’s diabetes was well controlled until he was hospitalized multiple times for diabetic ketoacidosis (DKA), peripheral neuropathy, juvenile rheumatoid arthritis, and asthma beginning at age 20. Around this time, Brett was also troubled by chronic ulcers on his right foot. He sought the care of a podiatrist and required multiple doctor’s visits. He would ultimately require two separate surgeries to remove diseased toes. At age 24, Brett developed severe nausea and vomiting. After several doctor’s visits, he was ultimately diagnosed with gastroparesis. Within the following years, Brett visited the emergency department several times for gastroparesis complications and underwent gastric peroral endoscopic myotomy (G-POEM).

At age 29, Brett was admitted to the hospital for diabetic ketoacidosis (DKA) and required intubation. He was extubated after 2 days and needed treatment for pneumonia. Brett became aware of significant, worsening numbness and weakness in both hands and his lower extremities at this time. Brett’s functional quadriplegia prevented him from sitting upright, standing, or walking. Brett was unsatisfied with his medical care at his current hospital and decided to transfer hospitals. Upon admission to the new hospital, Brett was treated for acute kidney injury and respiratory failure. Brett’s numbness and weakness was attributed to an acute exacerbation of his diabetic neuropathy.

Upon discharge from the hospital, Brett began acute physical therapy. 2 months later he was able to stand and walk with the assistance of a walker. He then transitioned to outpatient physical and occupational therapy. He is now able to walk with a cane.

Given this major hospital stay, Brett was grateful to also have comprehensive insurance coverage as an adult. In addition to sick leave policy, Brett prioritized healthcare plans when looking for his current job in public relations. Specifically, he looked for low deductible policies since he anticipated that his yearly insulin supply alone would meet this requirement as well as PPO plans that allowed him to have broader physician coverage. When he faced his major hospitalization at the age of 29, Brett had already met his $3,000 out of pocket maximum and therefore felt confident that his insurance would kick in. While this out-of-pocket cost is certainly not negligible, Brett appreciates that he knows in advance how much he will be spending on healthcare each year. Given the physical and emotional turmoil of his hospitalization, Brett is not sure how he would have coped if he also needed to worry about significant financial burdens during and after his stay.

[1] This is a pseudonym for the patient to protect anonymity

Explanation of Benefits (EOB)

Note the EOB is different from the bill as it breaks down what parts of the bill will be covered by insurance and which parts the patient is responsible for. In contrast a bill shows a granular breakdown of all charges related to a patient’s medical encounter.

“This case was written by Elizabeth Stiles and Katherine Stone (NYU Grossman School of Medicine). We thank the patient whose story has been adapted and portrayed as the case of Brett Formin. We share these details with their permission.”

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